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DSC02432_Despair

A chronic illness is a debilitating condition that is generally incurable and ongoing. It is something that becomes a part of your being. You can’t escape it; you can only hope to lessen its effects. Most chronic diseases do not have definitive tests so determining what you are fighting can be one of the most frustrating challenges. And because we do not have clear definitions of diseases, or precise tests, and certainly few cures… making sense of it can be virtually impossible. It is beyond a struggle. It is a battle. A battle for which you are likely restricted to fight. Your armaments are minimal.

Zebra is what a patient is called when their disability does not fit the definition of a well understood disease. And because they are rare, they are often misunderstood and misdirected… if not dismissed altogether. One becomes trapped in a body that has betrayed them.

For this fine art project I am manipulating liquid during the freezing process in an effort to highlight the rarity of disease and what that experience feels like to an individual. Pain. Powerlessness. Being shamed. Isolation. Well-meaning advice. Dismissal. Despair. Patterns in ice can be fairly consistent depending upon how the liquid freezes, but when different pressures are exerted, anomalies occur. Zebras.
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Copyright
Patricia Fortlage All Rights Reserved
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2214x2818 / 2.8MB
Contained in galleries
Zebra - A Chronic Illness Story
A chronic illness is a debilitating condition that is generally incurable and ongoing.  It is something that becomes a part of your being.  You can’t escape it; you can only hope to lessen its effects.  Most chronic diseases do not have definitive tests so determining what you are fighting can be one of the most frustrating challenges.  And because we do not have clear definitions of diseases, or precise tests, and certainly few cures… making sense of it can be virtually impossible.  It is beyond a struggle.  It is a battle.  A battle for which you are likely restricted to fight.  Your armaments are minimal.<br />
<br />
Zebra is what a patient is called when their disability does not fit the definition of a well understood disease. And because they are rare, they are often misunderstood and misdirected… if not dismissed altogether. One becomes trapped in a body that has betrayed them. <br />
<br />
For this fine art project I am manipulating liquid during the freezing process in an effort to highlight the rarity of disease and what that experience feels like to an individual. Pain. Powerlessness. Being shamed. Isolation. Well-meaning advice. Dismissal. Despair.  Patterns in ice can be fairly consistent depending upon how the liquid freezes, but when different pressures are exerted, anomalies occur. Zebras.<br />
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